Preventing Lymphedema Following Cancer Treatments 

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Lymphedema can be a side effect of treatments for cancer, such as lymph node dissection and radiation. However, individuals can develop lymphedema from several causes not relating to cancer. Lymphedema is the abnormal accumulation of protein-rich edema or swelling, that can develop in the arm or the trunk on the side of axillary lymph node removal.  

 

The lymph nodes are similar to the drain in a sink, in that they help drain the fluid away from the part of the body where they are located. For example, the left armpit has lymph nodes that drain the entire left trunk (front and back), as well as the left arm. If these lymph nodes are removed (which is necessary to determine the extent of the cancer), the fluid in this area stagnates or congests. Lymphedema DOES NOT develop following every lymph node removal. All bodies are “wired” slightly differently and many bodies can overcome this build up of lymph fluid by draining fluid to other lymph nodes, such as the neck or the abdomen.  

 

Lymphedema is not life threatening, but can be frustrating. Following surgery, everyone has inflammation due to the damage at the microscopic cellular level. Some individuals develop pain in their arm or trunk following surgery; that does not resolve as quickly as it should. This can be a sign of lymphedema; however, lymphedema in later stages is not painful.   Lymphedema is treatable and manageable. Most people are able to return to all normal activities with few changes. Treatment for lymphedema is available, but we would like to help you PREVENT lymphedema.  

Immediately following the surgery, take it easy and let others help you. By resting that arm and keeping your elbow next to your side, this allows adequate healing of the lymphatic vessels (vein-like tubes which carry lymph fluid). However, by moving the arm, especially raising it overhead, these delicate vessels can be torn apart, which causes more inflammation to develop in the armpit.   With more fluid accumulating in the armpit, a seroma, or large pocket of fluid, can develop, which ultimately can cause scar tissue to build up and lymphatic fluid to accumulate or congest.  

 

Please call to make an appointment for an evaluation, which will include discussing your particular case with the physical therapist, plus the taking of measurements of both of your arms and chest wall for baseline information. Follow-up visits will be scheduled, at which time you will be instructed in a home program that will reduce the likelihood of developing lymphedema. You will also be treated with a very gentle massage technique to help improve lymphatic flow. Each individual situation may vary, but these visits will likely be 2-3 times a week for 3-4 weeks. Individuals are discharged from physical therapy once the arm is moving well and they are able to manage independently.  

 
Strategies to Prevent Lymphedema and Speed Recovery 
 

n  No visitors-blame the evil therapist—give them our phone number and we will explain that we are trying to help get you healed up quickly and prevent lymphedema. 

*      You will feel guilty and you will “have” to be up for your visitors- i.e. fix tea, get showered, put on makeup, make the bed, clean the house 

*      Visitors will bring in their germs from the outside and you are at really high risk of infection after surgery 

*      Visitors can bring their awful stories of how someone else who had the same procedure did so horribly 

*      If you have a special friend who can come in and see you with uncombed hair, who is not sick and you will let them mother you---they can come in. 

n  Significant restriction in activity level-as any activity or even stress increases cardiac output-thereby putting more fluid into the body.  This will put more pressure on the inside of the surgical wound which causes more pain and increases risk of the wound opening up or getting an infection.     

*      No help with household chores or cooking.  You are already getting up to use bathroom…this is good enough activity to do frequently during the day. 

*      Have someone else walk the dog or take care of pets.  Your main job with the pets is to put your hand on them and let the snuggle to keep your blood pressure down 

*      Avoid exercise for cardiovascular conditioning or weight loss—you will be going back to that fairly quickly but if you do too much too soon you will increase risk of infection and make the drain stay in place longer.     

*      Ideally find comfy clothes to just live in so you are not changing-try to sleep in the same outfit you spend your day in unless you have to leave the house.     

n  Look at your drainage output chart with any increase determine what activity you may have done that increased the fluid load and avoid that activity.   

n  Typically drain stays in place until reduced to 20-25 cc per 24 hours for 2 days in a row 

n  We tend to not eat a lot when not feeling well or having just had surgery-however you really need to increase caloric intake.  It takes 1.25-1.5g protein + 25-30 calories per kg of body weight/day, about 1000 cal per day to heal the wound alone.  If you do not eat enough the wound will not heal and you will continue to be very fatigued:  Eat things like peanut butter, cheese, jerky-NO diet foods  

n  Manual Lymphatic Drainage (MLD) massage 4-6 times a day or any time you notice increase discomfort in the chest or arm likely due to fluid pushing on the nerves.  Ideally if you have a partner who can help do this-that it best.   

n  Arm immobilization-especially no moving arm away from body until drain is out plus 5 more days-avoid muscle guarding-tensing anticipating pain.  Best way to do this is use a safety pin on the inside of a shirt sleeve to pin the elbow next to the body-this will remind you.  If you pull the arm out to the side this can cause ripping of the healing that is occurring in the lymphatic collecting vessels that are trying to reconnect through the armpit where the lymph nodes may have been removed and where the skin was cut which would have cut through those vessels.  Until they reconnect fluid gets dumped into the armpit and can collect causing need for aspiriations to pull this out with needle and can increase risk of developing lymphedema-swelling which can require need to wear a sleeve on the arm during the day the rest of your life.   

n  Once you can move easily enough to leave the house, you can come see the physical therapists who can do the massage on you to help get the fluid rerouted to another area and this can help get the drain out sooner.   

n  After drain is out-we will work on increasing shoulder range of motion (ROM) using stretching techniques in the office and then you will stretch at home to keep the increase that you get in treatment.     

n  You will also be instructed in a gradual increase in activity level and eventually exercises for strengthening and cardiovascular conditioning.   


Exercises to perform While the Drain is Still in Place 

1.    Try very hard to not move your elbow away from your body.  Use hand and elbow as normally as possible--try not to muscle guard/tighten in anticipation of pain.  Resting the arm on a pillow can be comfortable.  Most importantly, ask for help and allow others to assist you.  Your body is healing and requires significant rest to heal properly and prevent problems down the road.   

2.    Check posture every 30 minutes:  

A.      Pull chin back so ears are over shoulders. 

B.       Squeeze shoulder blades together gently. 

C.           Pull shoulders down toward hips.   

D.           Use small folded towel or small pillow behind pelvis to support neutral back posture which helps keep shoulders in neutral position.    

     3.  Deep breathing--10 deep breathes every hour:   

          A.     Breathe in through your nose (you should feel your belly and chest expand). 

B.           Blow out slowly through your mouth with your lips pursed as if to blow out a candle.  

          C.     Blow out twice as long as you breathe in.   

     4.  Shoulder circles:  Gently rotate both shoulders forward in small (PAIN-FREE). 

          A.      Keep elbows next to trunk.   

          B.       Repeat 10 circles. 

C.           Switch and rotate shoulder circles backwards 10 times.   

D.           Repeat 4-6 times each day. 

      5. Scapular retractions:  

A.           Squeeze shoulder blades together gently. 

B.           Pull elbows down towards your buttocks at the same time.   

C.           Hold for 5 seconds and relax.   

D.           Repeat 10 times.  

E.           Repeat 4-6 times each day. 

       6.  Walking--while walking brace with your stomach muscles, hold them gently by pulling your belly button toward your spine but continue to breathe deeply--don’t hold breath.   

 

WAIT 5 DAYS AFTER the drain is removed, and then work on moving the arm and stretching out the armpit. 

 

Most people are worried about freezing the shoulder if the arm does not move immediately after the surgery. However, 6 months after the surgery, research shows that range of motion of the arm was normal in both the group that did not move the arm and the group that exercised aggressively after the surgery. The only difference was that the group that moved less had less pain and less fluid so the drain was removed faster. With less fluid accumulating at the drain site the chance of developing lymphedema decreases. Physical therapy can help you in preventing and managing any symptoms.